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Caring for patients and families at the end of life
This blog is for...
...nurses who care for patients and families at the end of life.
Laypeople and other health professionals may also find it useful.
I include links to resources and materials that enhance our practice and understanding.
If you've got a site or blog of your own, or if you've come across one that fits here, please post a comment.
Laypeople and other health professionals may also find it useful.
I include links to resources and materials that enhance our practice and understanding.
If you've got a site or blog of your own, or if you've come across one that fits here, please post a comment.
What's with the name?
It came to me in a flash of inspiration late one night while standing in front of the fridge.
It was loosely inspired by the emo band, Death Cab for Cutie, though I'm not a fan.
It was loosely inspired by the emo band, Death Cab for Cutie, though I'm not a fan.
About Me
- Jerry
- Expert nurse for patients and families facing serious illness and end of life. Certified in palliative care and hospice. Experienced in multiple settings, including specialty intensive care (high-risk bone marrow transplant, neuroscience), hemodialysis, inpatient palliative care, and hospice care in the community. Services: case management, consultation, advocacy, and education for clinicians, caregivers, and the community.
Also check out...
Important Note
This blog is full of my stuff.
Mine.
I hope you'll read it, and I welcome all comments (I don't use comment moderation - whatever you write shows up immediately).
You can even draw upon stuff here for your own material, but please give it proper attribution. It would also be nice to hear from you if you do use anything.
Thanks.
Mine.
I hope you'll read it, and I welcome all comments (I don't use comment moderation - whatever you write shows up immediately).
You can even draw upon stuff here for your own material, but please give it proper attribution. It would also be nice to hear from you if you do use anything.
Thanks.
The Guiding Vision
"There are few individuals or occupations whose members can cope with what direct care registered nurses experience as routine.
High levels of intense stress, emotionally and physically demanding work, and a constantly expanding body of knowledge necessary to competently do the work exist within confused channels of authority and the professional and social mandate to be a "good nurse."
As we, the nation's 2.9 million registered nurses, continue to view our work beyond the central passive concept of "caring" and build upon our active professional mandate of "advocacy" - the powerful and active voice of nursing will drive both the design and the delivery of patient care and shape this bold new frontier of nursing."
Barry Adams, RN
as quoted in The Massachusetts Nurses Association monthly newsletter for May, 2009
High levels of intense stress, emotionally and physically demanding work, and a constantly expanding body of knowledge necessary to competently do the work exist within confused channels of authority and the professional and social mandate to be a "good nurse."
As we, the nation's 2.9 million registered nurses, continue to view our work beyond the central passive concept of "caring" and build upon our active professional mandate of "advocacy" - the powerful and active voice of nursing will drive both the design and the delivery of patient care and shape this bold new frontier of nursing."
Barry Adams, RN
as quoted in The Massachusetts Nurses Association monthly newsletter for May, 2009
Critical and timely links
2009 Palliative Care Grand Rounds
End of Life & Palliative Care Resources
- AAHPM/HPNA 2010 Annual Assembly
- American Academy of Hospice and Palliative Medicine
- ELNEC - End of Life Nursing Education Curriculum
- End of Life Care in America - a radio series
- Five Wishes
- Harvard Medical School Center for Palliative Care
- Hospice and Palliative Nurses Association
- Medical College of Wisconsin End of Life/Palliative Care Resources
- Stanford's CancerPEN
End of Life & Palliative Care Blogs
Life, Death, Healthcare, etc.
- Atul Gawande
- Boston Health News
- Cranky Old Retired Guy
- Disruptive Women
- Division of Medical Ethics at Harvard Medical School
- Fresh Widow
- Grief Healing
- Grieving Room at DailyKos
- Institute for Healthcare Improvement
- Jerome Groopman
- LitSite Alaska - Narrative and Healing
- M.S. in Narrative Medicine
- Money-Driven Medicine
- New Health Dialogue
- Nursing Writing
- PABLOg!
- Phil Baumann
- PTSD Combat
- The Health Care Blarg
- The Sterile Eye
- Wouldn't You Like to See Something Strange?
- Wounded Healer
For Good Self-Care
FAIR USE
This site contains images and excerpts the use of which have not been pre-authorized. This material is made available for the purpose of analysis and critique, as well as to advance the understanding of clinical, social, and cultural issues.
The 'fair use' of such material is provided for under U.S. Copyright Law. In accordance with U.S. Code Title 17, Section 107, material on this site (along with credit links and attributions to original sources) is viewable for educational and intellectual purposes. If you are interested in using any copyrighted material from this site for any reason that goes beyond 'fair use,' you must first obtain permission from the copyright owner.
The 'fair use' of such material is provided for under U.S. Copyright Law. In accordance with U.S. Code Title 17, Section 107, material on this site (along with credit links and attributions to original sources) is viewable for educational and intellectual purposes. If you are interested in using any copyrighted material from this site for any reason that goes beyond 'fair use,' you must first obtain permission from the copyright owner.
Confidential Health Information
All clinical case information in this blog is provided for the purpose of professional education, and meets the criteria for de-identified health information as set forth in the HIPAA Privacy Rule.
Specifically with regard to What Information is Protected:
"There are no restrictions on the use or disclosure of de-identified health information. De-identified health information neither identifies nor provides a reasonable basis to identify an individual."
Specifically with regard to What Information is Protected:
"There are no restrictions on the use or disclosure of de-identified health information. De-identified health information neither identifies nor provides a reasonable basis to identify an individual."